Hey everyone! Sorry it’s been another full year, almost to the day! Lots have happened so let me fill you in real fast. Stay tuned for more posts regularly, because life has very drastically changed!
So first and foremost, in October of last year, I was diagnosed with kidney failure. I spent about three weeks in the hospital initially, getting on dialysis and figuring out what happened with my body. Doctors found out that I have a rare blood disorder called Atypical Hemolytic Uremic Syndrome, which in laymen’s terms, means my blood is toxic to my body, and my body believes that my blood is a foreign invader and so it tries to kill it off. I was placed on a drug called Soliris, which is supposed to bind with my blood cells making them non toxic and keeping my body from attacking them. It’s been largely successful especially in recent months. My health took a turn for the worse when my dialysis port got infected with staphylococcus and I contracted a brain infection and had three mini strokes. I was placed on antibiotics for the infection and seem to have only slight memory lose and memory retention defects as a result. About a month later, I was hospitalized a third time, this time because I contracted double pneumonia and almost lost my lungs to the disease. I was place on a ventilator for 19 days and placed in a state of paralysis until my lungs had enough strength to work on their own. I needed intense rehab, due to the fact my leg and back muscles had all atrophied from laying in a hospital bed for almost a month and a half. So, I’ve been working, trying to get back to a normal state of being. Im currently in the process of getting a kidney transplant and coming off of in center dialysis and doing what is called peritoneal dialysis, at home with my mother. However, dialysis is not a cure, merely a place holder. I cannot live on dialysis for the rest of my life. So your prayers and words of encouragement are greatly appreciated. Stay tuned for more updates as this develops!
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